Pennsylvania IPF Support Network

We help Pennsylvanians living with Idiopathic Pulmonary Fibrosis (IPF)

The goal of the Pennsylvania IPF Patient and Caregiver Support Network is to raise awareness of Idiopathic Pulmonary Fibrosis (IPF) and provide support and education to patients, families, and healthcare providers throughout the Commonwealth of Pennsylvania.

Announcing our NEW MOBILE WEB APP!
PA IPF Support Network celebrates the first of its kind MOBILE WEB APP pioneering the effort to connect patients, families, and healthcare providers to support, education, and resources at their fingertips!

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Learn

What is IPF?

Idiopathic Pulmonary Fibrosis is the progressive scarring of the lungs that occurs when air sacs known as alveoli gradually become replaced by fibrotic tissue or scar tissue. As the scar tissue becomes thicker, it leads to stiffness in the lungs, making it difficult to breathe. Pulmonary fibrosis is found in over 200 lung disorders, so it is important for your health care provider to identify the cause of the fibrosis, because different types of fibrosis respond to different treatments.

About Pennsylvania IPF Patient and Caregiver Support Network

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Who we are

We are a support network dedicated to connecting patients living with IPF, their caregivers, and healthcare providers to each other as well as to important resources and information.

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Why we're here

We know that this is an uncertain, confusing, and overwhelming time. Being able to connect with those who know what you are experiencing and with those who can offer help to ease that uncertainty and offer the comfort and support you seek.

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Who we support

Patients, care partners, and healthcare providers are our primary focus.

Resources

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PFF Care Centers

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Patients and
Care Partners

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Education

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Patient Guide

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Patient Checklist

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Provider Checklist

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Professionals

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Podcast

Stay Up To Date

Latest News

CARING for CARE PARTNERS FAR & WIDE

As we continue to highlight #NationalCaregiversMonth, we invite you to join us next Friday, and the first Friday of every month for our Coffee with Care Partners Support Group. Here we discuss self-care, life management, major role changes, and many other topics, all with the goal to help you feel a part of a community…

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HAPPY THANKSGIVING 2022!

We wish you and yours a very HAPPY Thanksgiving today! We are so thankful to be able to provide support and resources to our patients and care partners each and every day as they navigate #pulmonaryfibrosis. What are you thankful for today?

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PA-IPF Support Network Pulmonary Fibrosis PODCAST: “What is an exacerbation and how do I manage it?” Dr. Nathaniel Marchetti from Temple Lung Center

Episode 19 of the Pulmonary Fibrosis Podcast is out TODAY! Thank you to Temple Lung Center‘s, Dr. Nathaniel Marchetti, dedicated pulmonologist for talking about acute exacerbation, what it is, and a patient & care partner’s way to manage it. Visit paipfsupportnetwork.org to learn about this informative podcast and the other 18 incredible PF Podcasts available!

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Get exclusive access to our new podcast

Meet Our Champion

Senator Pat Browne

Senator Browne

Pat Browne

PA State Senator, 16th District (Lehigh County)

Over the years, Senator Browne has been a tireless champion of those living with IPF. He authored the legislation that designated the second week of September as “IPF Research and Awareness Week” in Pennsylvania.

Through our extraordinary advocacy partnership with Senator Browne, over $200,000 of state grants have been secured to promote broader public awareness and deliver education and support to patients, families, and healthcare providers throughout Pennsylvania. His efforts have helped to launch this network!

Sen. Pat Browne represents the 16th Senatorial District (Lehigh County) and serves as Senate Appropriations Committee Chairman. The committee, one of the most powerful of the Senate's standing committees, reviews all legislation for its fiscal impact and plays a crucial role in developing the state budget.

Thank you to Sen. Browne for his advocacy and support of our community through the years!

Stories & Experiences

Brian Zionts-Bernstein

Brian Zionts-Bernstein was diagnosed with interstitial lung disease (ILD) at the age of 42. A lung biopsy later showed that he had idiopathic pulmonary fibrosis (IPF). Brian’s journey is a story of two families--his family and the family who remains anonymous to him, who gave him a second chance at life."

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Want to get in touch? We’d love to hear from you

Data

Facts about IPF

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Affected per year

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New cases per year

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Die from IPF per year

We now have a web app that offers a streamlined experience on your mobile device. Click here to see it!